Far too often, individuals who should be receiving hospice care are not receiving it. The most common reason is the belief that “once I am on hospice, I am going to die”. I often hear people say “my loved one went on hospice and died the next day” but the reason that sometimes happens is because they waited too long to get on to hospice initially. The truth is that people on hospice live a longer and have a better quality of life than those who do not receive care. Individuals can be on hospice for 6 months or longer, depending upon their condition. Hospice also provides a variety of equipment, supplies, medications, and support to make patient’s lives better!
Today I would like to review the most common obstacles in accepting hospice care and how to overcome them:
Fear
Fear of dying or losing a loved one is the number one fear in America. Unfortunately, this fear can be crippling and cause individuals to not make proactive decisions about end of life care.
The most common concerns are:
– Will I be in pain?
– If I accept hospice care, am I giving up?
– What will happen to my family, my pet, etc.?
– Did I live a purposeful life?
– Will I die alone?
– Spiritual concerns…is there anything after our earthly existence?
Having open conversations with individuals to pinpoint what they are afraid of, and addressing these concerns, can help to break down the wall of fear.
Lack of Communication Between Health Care Providers and Patients
Some health care providers are uncomfortable having conversations with their patients about end of life, or are focused on offering treatment alternatives. Additionally, it can be difficult for a patient to understand what the physician is telling them. Studies show that 50% of patients reported not having a clear understating of terminology, their diagnosis, condition, treatment options, and outcomes of treatment. Accompanying loved ones to appointments, asking direct questions, and clarifying information can go a long way in clearing up any misconceptions and make the decision process easier.
Concerns about cost:
Many people do not understand how their insurance coverage works, or what is covered under their plan. Most Medicare/ Medicaid plans cover hospice care as long as the provider is Medicare/Medicaid approved. Many private insurance plans also cover the cost of hospice care. Insurance can be difficult to navigate. Fortunately, hospice assigns a social worker and case manager to help answer all of your questions. They can also work to find additional resources to help cover your needs.
Never be afraid to ask questions or voice your concerns. Remember, you only get one chance at the end of life and it should be a physically, emotionally, and spiritually comfortable experience.
Judith Arasi - End of Life Doula 